Panel Discussion: Integrating the Patient Voice into Rare Kidney Disease Drug Development through Trial Design, Endpoint Selection, & Treatment Delivery to Improve Therapy Adoption & Satisfaction

  • Incorporating patient perspectives early in drug development to ensure therapies address meaningful outcomes such as disease progression, dialysis avoidance, and quality of life
  • Incorporating patient priorities and lived experience into therapy design and development strategies
  • Understanding treatment burden, delivery preferences, and risk tolerance from the patient perspective