Sherrita Dorsey
US Head Patient and Professional Advocacy Amicus Therapeutics
Seminars
Wednesday 19th August 2026
Panel Discussion: Integrating the Patient Voice into Rare Kidney Disease Drug Development through Trial Design, Endpoint Selection, & Treatment Delivery to Improve Therapy Adoption & Satisfaction
4:30 pm
- Incorporating patient perspectives early in drug development to ensure therapies address meaningful outcomes such as disease progression, dialysis avoidance, and quality of life
- Incorporating patient priorities and lived experience into therapy design and development strategies
- Understanding treatment burden, delivery preferences, and risk tolerance from the patient perspective
