2025 Speaker Faculty

2025 World-Class Speaker Faculty:

Alex Duncan

Associate Director Of Digital Creative Operations

Michael Kors

Alisa Thompson

Director of the Division of Cardiology & Nephrology

FDA

André Weinstock

Research Director

Alport Syndrome Foundation

Arjun Channi

Director – Global Regulatory Lead – Rare Disease

Sanofi

Craig Gordon

Associate Professor

Tufts University School of Medicine

Didier Laurens

Chief Executive Officer

Advicenne Pharma

Fredrik Erlandsson

Chief Medical Officer

Purespring Therapeutics

Jason Brown

Chief Business Officer

Everest Medicines

Joseph Kupferman

Global Clincial Head - Renal, Late-Stage Development CVRM

Astra Zeneca

Josh Tarnoff

Chief Executive Officer

NephCure

Julie Lin

Senior Vice President - Clinical Development

Travere Therapeutics

Kishor Devalaraja-Narashimha

Director, Cardiovascular/Renal Research

Regeneron Pharmaceuticals

Kristin Van Goor

Head Executive Director, , Global Regulatory Policy & Innovation (US)

Takeda Pharmaceutical

Lisa Bonebrake

Executive Director

Alport syndrome Foundation Inc.

Maarten Hoek

Senior Vice President & Head of Research

Maze Therapeutics

Magnus Nicolson

CEO

Invizius Limited

Mary E. Haas

Co-Founder & Chief Medical Officer Head of Research & Development

Regeneron Genetics Center

Michael Kuefner

Principal Scientist

Arbor Biotechnologies, Inc.

Paul Hockings - 5th Rare & Genetic Kidney Disease DD Summit

Paul Hockings

Senior Scientific Advisor

Antaros Medical AB

Rohit Gaurav

Principal Scientist I, Translational Research Expert Translational Research & Data Science

Novartis AG

Ron Flauto

Senior Medical Director - Global Medical Sciences

Aurinia Pharmaceutical

Sean Eddy

Associate Research Scientist – Rare Disease Network Systems Biology

University of Michigan

Steve Miller - 5th Rare & Genetic Kidney Disease DD Summit

Steven Miller

Chief Medical Officer

MediBeacon

Tiffany Patrick

Chief Patient Officer

Amicus Therapeutics, Inc.

Vamil Divan

Managing Director - Equity Research, Biopharmaceuticals

Guggenheim Securities

2025 Event Guide