Lisa Bonebrake

Company: Alport syndrome Foundation Inc.

Job title: Executive Director

Seminars:

2:00 PM Roundtable Discussion: Accelerating the Role & Implementation of Genetic Testing in Rare Kidney Diseases 2:00 pm

This session provides the opportunity for smaller groups to come together, share learnings, analyze, debate, and discuss the below topics. Participants will discuss the questions provided for 15 minutes, followed by 15 minutes of feedback.Read more

day: Conference Day 2

9:00 AM Panel Discussion: Ensuring the Patient Voice is Heard to Work Towards Successful Collaboration Between Industry, Academia, Clinicians and Patients 9:00 am

Elevating the lived experience of patients to drive relevant research and diagnosis Developing strategies to prioritize patient preferences in trial design, care pathways and policy advocacy Outlining the role that patient advocacy can have in articulating the needs and priorities of the rare and genetic kidneyRead more

day: Conference Day 1