Joshua Tarnoff

Company: NephCure Kidney International

Job title: Chief Executive Officer

Seminars:

Reducing Patient Burden & Diversifying Rare Disease Trials: What is the Best-Case Scenario? 2:00 pm

Investigating limited representation in rare diseases and how we can ensure heterogeneous populations and diseases presentations are represented in trials Explore innovative recruitment approaches to enhance diversity of patient enrolment Assessing ongoing efforts at the sites and global levels to minimize patient burdenRead more

day: Conference Day Two

Panel Discussion: What Do Patients & Advocates Wish Drug Developers Understood to Build Trust & Improve Insight Exchange 4:00 pm

Evolving the patient engagement paradigm in rare diseases to ensure patient voice is never lost through the development process Connecting undiagnosed individuals with testing and resources to build community Stories of successful patient engagement and areas for industry to improveRead more

day: Conference Day Two