B. André Weinstock

Company: Alport Syndrome Foundation

Job title: Director - Research

Seminars:

Panel Discussion: What Do Patients & Advocates Wish Drug Developers Understood to Build Trust & Improve Insight Exchange 4:00 pm

Evolving the patient engagement paradigm in rare diseases to ensure patient voice is never lost through the development process Connecting undiagnosed individuals with testing and resources to build community Stories of successful patient engagement and areas for industry to improveRead more

day: Conference Day Two

Integrating Patient-Centric Outcome Measures to Enable More Holistic Assessments 11:00 am

Developing tools to study improving symptom experience to be incorporated in tandem with traditional endpoints during clinical decision making Collaborating to ensure that evidence-based approaches capture patient perspectives of the clinical trial experience and more effectively evaluate drug efficacy Discussing development of a data dictionary in collaboration with clinicians in the context of rare diseaseRead more

day: Workshop E