Workshop D: Amplifying Patients’ Voices: Understanding Patients’ Perspective & Experience to Optimise Treatment
Time: 8:00 am - 11:00 am
day: Workshop Day Track B
Details:
Improving treatment by strengthening the relationship between patients, nephrologists, and drug developers. Attend this workshop to hear directly from patients with rare and genetic kidney disease to better shape the future of renal treatment.
- Engaging patients in every step of research and the development of clinical trial design
- Educating patients and clinicians on early symptoms and the importance of genetic testing
- Encouraging a global initiative and ensuring registries are collecting data in a standardized manner
- Navigating strategies to ensure diversity and inclusion in clinical trials
- Empowering a “care triad” model for collaboration among patients and nephrologists
