2:30 PM Innovations in Patient Identification & Clinical Outcome Tracking to Create a Succinct Patient Care Ecosystem to Improve Patient Experience
Time: 2:30 pm
day: Pre-Conference Workshop Day
Details:
Join this workshop to gain actionable insights to leverage innovative approaches in patient identification and clinical outcome tracking, contributing to more efficient, integrates and patient-centered healthcare ecosystem, leading to better experience and improved outcomes for individuals living with rare renal diseases.
This workshop will gather experts to discuss:
- Developing platforms clinical trial recruitment, specifically in paediatric populations, to prevent full disease manifestation in adulthood
- Addressing challenges in engaging and empowering patients in their decisions to join clinical trials
- Accelerating the use of electronic medical records to reduce bottlenecks in identifying rare disease patients globally
- Working towards an integrated healthcare ecosystem where the patient community, providers, industry, and regulatory bodies collaborate effectively, with patient advocacy driving improvements in care and policy
- Lessons learnt from clinical trial outcomes that allow for better identification of patients for future trials
- Improving the standard of care for patients with rare disease and understanding best practices for effective communication to streamline care
- Harnessing AI and automation in patient identification and outcome tracking to trigger actions, alert clinical teams and suggest future actions for patients
